Daily Archives: October 6, 2018

Thankful for our ‘team’

This past week we met with Berrik’s school and the psychologists to go over the results of his recent psychoeducational assessment.  I want to start by trying to express how incredibly stressful this process is – for me, and for Berrik.  While the psychologists do their best to make Berrik feel comfortable, he knows he’s being tested, and this creates anxiety.  And I’m sure all moms feel this – when your child is experiencing anxiety (or fear, sadness, joy, etc. etc.) it’s pretty tough not to feel it right along with them.  He is afraid of ‘failing.’  His experience in grade one has given him this context – and in spite of a very successful year in his new school last year, the impact of his past experiences live on and surface in these testing situations.

Fast forward to the results.  Thankfully this is a very collaborative process.  The psychologists came to the school and met with me, Berrik’s teacher, and the family-school liaison counselor.  Having the teacher and counselor there is so critical because they know Berrik and they know what he’s capable of and can (and did) speak to it, lending credence to what likely sounds like crazy, biased mom talk when I speak to it.  Not surprisingly, Berrik’s test results are all over the map.  Average in some areas, low in others.  This is not new, and not unexpected for a kid like Berrik.  The tests are really quite limited in what they can tell us about Berrik as there are so many factors that impact the ability to test different areas.  Berrik is a complex kid – one example would be processing speed.  This is a timed test that requires writing with a pencil.  Timed tests produce a huge amount of anxiety for Berrik – so much so that he almost shuts down completely.  He has developmental coordination disorder which impacts fine motor skills which means writing is difficult and an activity he does not enjoy.  So – the test results suggest a very slow processing speed.  But it isn’t reflective of what he’s capable of, so has limited value.  Is his processing speed lower than average?  I would say yes.  But does it have the severe impact that the number would suggest? No.  This is just one example of several that were discussed at the meeting and will show up in the report.

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Berrik and his two fabulous teachers

This leads me to where I start to get anxious.  In the context of Berrik’s school and his teachers, this information means very little and doesn’t concern me.  His IPP is totally reflective of where he is at, where we are going, and what accommodations are needed to get there.  The school team knows him, knows what to do to get him where he needs to go, and I trust them more than I have ever trusted anyone besides family when it comes to Berrik. But what if that report is in the hands of someone who doesn’t understand the limitations of the tests and therefore the limited value of the results?  The labels and the reports, produced by people who have known Berrik for a total of 2 hours each, but could potentially follow him for the rest of his life scares the bejeezus out of me.

I have written before about labels (Read about it here:  Labels are for Mabel) and I believe they have more of a system value than an individual value, especially for us.  This leads me to why I am feeling so thankful, this weekend and all days.  Berrik’s teachers know him well and spent the past year helping him regain his confidence, gaining his trust (and conversely, gaining my trust) and working on all of the skills that contribute to his ability to find success at school and in life.  They talk about Berrik’s availability for learning, which I just love.  The goals for Berrik (and all the kids) are not just academic.  The goals are to do what needs to be done with and for Berrik to increase his ‘availability for learning’, at which point the academics will follow.  Reminds me of this post Kids will do well…  I love this for so many reasons.  It is why Berrik is doing so well in school. If only this approach could be taken for all kids, everywhere.

I commented in the meeting that I have had times where I felt hopeless and I had such fear for Berrik’s future. But the school, the teachers, the team approach, and the full recognition of Berrik’s potential and the desire to figure out what makes him most available for learning has allowed me to trust, hope and dream once again.  I cried in that meeting.  I am crying again while typing this.  It’s hard to admit I lost hope at times, because that makes me feel like a bad mom.  I know that if we had not found this school, the trajectory of Berrik’s life would have looked very different and the thought of that brings me to tears.  It also leads me to think of all the kids who struggle like Berrik, who haven’t been as fortunate.  It’s heartbreaking.

All this to say that while the tests and reports and labels all serve a purpose, for Berrik they are almost inconsequential in terms of his schooling because he already has the support and resources he needs.  When I left the meeting, I walked out with Berrik’s teacher.  She gave me a hug and said, “We are on your team Chandra.”  I knew it, but it is always good to hear the reminder.

We have a big team.  The school, my friends who work ‘in the business’ who really ‘get it’ and let me vent and ask questions, my sister in law who is also ‘in the business’ and has been a source of so much support and information – all in the context of her love of Berrik, my brothers who just seem to ‘get’ Berrik and know how to make him feel special, my parents who build Berrik up in so many ways and support me as I try to advocate for him, my girls who show Berrik what unconditional love looks like – with all the joy and annoyance that exists in any sibling relationship, my friends who just listen, and all of our extended family.  I remember Kevin’s dad once commenting in the context of a conversation about Berrik and his ‘labels’ that he didn’t care about that.  “He’s my grandson and I just love him.”  Period.  One sentence to get right to the heart of it.

And while this week has been low on sleep and high on stress, I know that everything will be ok.  Because we have the best team.  And for that, I am thankful.

Just a few members of our team: